David was down for the long weekend. It was nice to spend time just the two of us and as a family when Mom and Madeleine came.
Madeleine has been having a difficult time at home. She is really missing Mom and her normal existence. But on this visit, she came for a week now that school is out.
We went on bike rides, worked on her grade two review, painted nails, painted sun-catchers and generally spent a tonne of time together. I am incredibly grateful to my mom for helping out and entertaining Madeleine when I was fatigued. But all and all, it went better than I expected. There is always some readjustment when parent and child has spent time apart but Madeleine is so eager to please, she really tried her best.
By the end of the week, she was making beds and chopping salad ingredients. She constantly ran around getting things for me. I can see she will be a huge help when I get home.
And Madeleine is eager to get home. She talks about her room, seeing her friend next door, being with her brother. She's eager for movie and pizza nights and wrestling with David. I can't say I blame her. I'm aching for all those things too. Normal life...
I am worried about adjusting my expectations for home. I know what I was able to do before the transplant and mostly I just pushed through the tiredness. I'm not sure now. I can't tell if my fatigue is just boredom or if its really more from the transplant. All the material I read talks about the fatigue lasting for about a year. But I've been living with fatigue for more than a decade. I guess we can only wait and see.
In the meantime, I put on a big soup of borsht. Trying to heal my stomach to old fashioned way. Nothing like the smell of beets and dill together!
No comments:
Post a Comment