The decision to go to New York is difficult. It turns out the trial is 12 weeks away from home. Another three months away from my family for a treatment that may or may not work.
I don't want to die there either. I'm still trucking along but the lymphoma can rapidly get worse. I want to be at home surrounded by my family if and when I go. Besides I'm frugal....bringing a body home is very expensive.
If the funding is not provided by Alberta Health Care, the decision is easily made. We cannot afford 12 weeks in New York. Between flights, accommodation and paying for blood products, the costs would be astronomical. We will find out Friday about the funding.
The chemo options that Michael mentioned are not at all good options and I would not bother considering them.
So if the trial is a no go, we are essentially preparing for home care and palliative care. I think everyone is still hoping for a miracle.
Most days my body tells me the fight isn't over. It continues to keep going and slowly recover all the issues from the transplant. Odd that my body is busy repairing damage and yet I'm fighting an aggressive cancer. Why does the body put energy into hair when it needs to put energy into making T-cells to fight this?
Anyway, I don't think this is over. For now I'm in the hospital on a precautionary basis. I hope to be out in a couple of days and we will go from there.
So let's end with happy news.
My Aunt Linda is coming back to care for me. This will really take a burden off Mom and Linda is good at setting goals for me and helping me get there. I've missed her greatly.
I have wedding pictures back and we have some lovely ones. Here are just a couple.
Drinking from our red neck wine glasses courtesy of my cousin!
Cake cutting at the beautiful reception my mother hosted.
Send love and hugs as usual.
E
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