Day 12 and 13

It has been such a whirlwind of activity around here, I literally have not had time to write.  Yesterday morning (Wednesday), I tried to sit down on three separate occasions to write you, only to be pulled away.

Because time has very little meaning here, I will giving you the random highlights in a loose order if I can.

We have now had two days of negative blood culture results for fungi (this is good) but have a confirmation that we are infection free, we need five negative results.The lab has pinpointed the type of fungi we are working with so my medication has been toned down from the entire military  to special ops.  This is also good because this morning my kidneys are unhappy with the big guns. We were unsure about my tolerance to this group of anti-fungals but so far there haven't been any reactions.

I also got a PICC line insterted yesterday.  It is threaded into the same vein as my CVC but it exits just above my elbow rather than on my chest. Two bright young women pumped up my bed so I had a great view of the city and got to work.  It was painfree and simple.  More importantly, it meant my IV and sub-Q line came out and I could return most of the meds back to IV format. YAY!  NO MORE POTASSIUM SHOTS...at least for now.

It appears to me that my mouth and GI track is starting to heal.  I got 3/4 of a small chicken breast down. It took me an hour to do it very gently but I did.  Auntie Linda was doing the happy dance. In fact my appetite is better all the way round.  I'm starting to crave all kinds of things.  Fresh homemade bead slathered with butter,  a gooy piece of pepperoni and mushroom pizza, or a slice of decadent chocolate torte. mmmmhhhhhhh  I even have a little craving for McD's sausage sandwich but alas that one will have to wait as I won't be able to dine out for a long time at any restaurant.

I have been up and walking a lot.  The nurses all are impressed at Linda and I peeling  rubber around 57.

I want to say a huge thank-you to all the people who have been praying for me.  I believe that every one is heard.  We are still in a dicey position  in terms waiting for the infection to clear and the bone marrow to engraft and start helping.  So please don't cut me off your list quite yet.

I did want to share a couple of photos as well. My Dad, Michael really wanted to shave his head to show his support of my journey.  So I received this one evening.  He had gone out and done it without warning my anyone.  My poor mother must have been shocked.  Madeleine thought it was great and she laughed and laughed.

A couple of days later, I got this texted to me, fresh from the barbers shop

And this afternoon, this one.  Josh (David's son) is on the left.  Trevor (Josh's friend) on the right.

These men have made me feel very special indeed, like a million bucks.  I know my journey hasn't been easy on them, particularly David and Michael but this gesture really tells me how I am loved and cared for. So thank-you gentlemen!

Well its 3:30 A.M. and time for my bed.  Wishing you all the happiness and laughter tomorrow can bring.

Hugs and kisses,
E