Yesterday was not a stellar day. It ranked down then as one of the worst here. When I asked my Auntie what was positive about the day, she said "Well, no more morphine to make you nauseated And you got half a yoghurt down." LOL
Unfortunately, it was a day full of pain, fatique and occasional bouts of nausea.
At one point, I tried to roll over and get up at the same time. I felt as though someone had punched me in the back and chest at the same time in the same place. I couldn't breathe. The nurse was not happy. He kept checking me over and over and eventually ran heart attack blood work and an ECG. The results came back clear, thank goodness. But the resulting mess of my GI pain and this added, I couldn't move inches without groaning.
But you see everything always works out OK! My brilliant nurse packed me with hot pads and blankets throughout the night. Because of her, I can move my shoulder slowly, without much negative effect.
Also my Auntie advocated to get me off the morphine. Instead we got a related product. It works well and leaves me drowsy at the worst.
Today, I feel much better. And today we are doing another round of ATG. You may remember that this is the rabbit immunosuppression. I have signed up for a research project that applied an extra day of ATG on day 8. Past studies have shown that this has reduced GVHD from 40% to 24%, I have the blood markers of someone who will likely get GVHD. I am excited that this extra step is available. Some patients need GVHD to kill their disease but AA is not one of them.
I'll sign off for nowbith hugs and love,
E
No comments:
Post a Comment