Saturday, May 10, 2014

Day 15 and some random pics.

Day 15 went very well.

I got a bag of platelets to stop the bruising.  There are many tiny bruises (call petechiae) all over my body. Petechiae are tiny blood capilliaries vessels bursting just below the skin.  I've included a picture(albeit not great selfie, LOL) from the upper arm.


These ones are likely caused by the blood/pressure cuff and my platelet level was six. 


These were caused within 20 mins of having air stocking on in which we forgot to fold a seam on my pants correctly.

I also got a bag of blood.  Between the blood and quantity of steroids I'm on, I have a teeny weenie bit of energy LOL

I managed to eat a cup of watermelon and a bowl of cereal, half a turkey sandwich , small bowl of soup, two pieces of roast beef and a scoop of mashed potatoes, two mugs of tea, digestives cookies and finally a Baby Bell cheese round.   I am very proud of this accomplishment.  It is one of the markers they look for in moving out of the ward to independence.

And did we ever walk. We forgot to count our laps but I would say we hit the 1 km mark.

While I do definitely have a staph infection, the doctor is more worried about keeping the yeast infection gone especially because they can rear their ugly heads up later and cause far more problems.  If the staph infections continues, we will likely pull out the PICC line.  But that is a decision left for after the weekend.

For the weekend we are just watching with anticipated breath for those white blood cell counts to rise.  David will be here tomorrow and I'm excited to see him. I'm hoping the everything will be cleared for my family coming next weekend. We all miss each other very much but we are also focused on the end goal of happy and HEALTHY.  Its been five weeks since I've last hugged Madeleine. Or Josh or my parents or my dog!

I have a new found respect for families who must spend times separated for work or duty!

Below I added some pictures from Linda's camera. They are random.
 Been lots of rain and snow in Calgary. View from my window.
 Horrible potassium drink.I have micro-tears in my mouth and GI track from pushing the solid food.  Tonight's dose actually made me cry after a few choice expletives.
 I fell asleep while lifting the spoon. Linda had go keep waking me up reminders to chew and swallow.

Linda wanted a picture up of all the drugs they are running . I  have the equivalent of  three IVs. During treatment days, I have all three lumens with back to back continuous infusions.

                                       
MY new PICC line.  The white covers are burn netting to help reduce catching and pulling.  The line runs right on the inside of my bicep and so the picture orientation is correct for you.

Veronica, my lovely PCA. She has taken such great care of us. The is the amazing strawberry milkshake maker and all around gold star person!

Two last things?  

1. Does anyone have a good tried and true high protein snack recipe?  Like a granola bar not as sweet? Would you share in the comments below?
2. Also, did anyone get to enjoy something special that was pretty normal?  Mine was having a cup of tea with cookies after dinner.  It was so relaxing and creamy,  The cookies were plain but ones that took me back to my childhood.  Share in the comments below it you want to.

Anyhoo,

Off to sleep.  Have a great day!,

Hugs and love,

E

2 comments:

  1. Special but normal for me...Mike was home for dinner so we all at the table together and talked about our day. He isn't often home for dinner during the school year.
    There is this great pale snack that I love, but I don't know how high in protein it is. I will Google around.
    Do you want some oils to help you fight the infection? You could diffuse them in your room or just put them on the bottoms of your feet. They can kill MRS and fungus and all kinds of thinga. Just need an address.

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  2. Kim, thanks for writing back. Any snack higher in protein and protein than a digestive biscuit is great. We are finding better ways to get snack and drink calories in.

    In terms if the oils, I need to check with my doctors, pharmacist and nutritionist. I'm all over any additional help. I was amazed at their revised no go list for one drug called cyclosporine. Not just grapefruit but now starfruit, marmalade made with Seville oranges, no pomegranates, no pomelos, or tangelos. Truly amazing to me.

    But I may be able to diffuse what I can't put on or in my body. Very kind of you to think I'd me Kim. I will pm you the new address and see what info I can track down about products to avoid.

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