Wednesday, August 27, 2014

1:45 am and I can't sleep.  Too much steroid today but it creates a great time to catch up on emails and the blog.

The last week has been crazy as you might expect.  Appointments everyday at the Cross.  I've had a PICC line put in to save me crying every time I have to get an iv, biopsy done, treatments, blood, CT scans and on and on..

Mom has been amazing driving me to every appointment and on my days off, she brings me to her house so I don't have to be alone.  And she is doing this on top of preparing and cooking the reception for the wedding.

Neighbours and friends have dropped off delicious meals and the offers to help.  People I don't know are offering to help.  Its amazing.

Some positive news is that last week, my viral loads came down so hopefully the ritux is starting to work.  Also the CT scan showed no increase in lymphoma and may show some dying lymph nodes.  I'm praying this is the case.

As you would imagine, I'm walking the path of being scared out of my mind, exhausted and back to the surety of good health.  Its a rollercoaster and some days I'm not so graceful how I handle it.  Some days I'm amazed by my resilience.

Madeleine is starting some art therapy which I think she will enjoy.  It will give her a nice place to be a kid.  The lady has some fun projects and storytelling abilities.

Family is starting to arrive for the wedding.  It will be lovely and hopefully not too tiring.

Sending love and hugs,
E

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